標籤: 特殊兒童

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座談會： 正向行為介入與支持（PBIS）| 郭鳳宜教授

世界上没有完美的父母：每个家庭都是独一无二的，父母是自己最好的问题解决者。当我们互相学习时，我们会变得更强大。育儿没有唯一的方法，也没有所谓的“绝对正确”的方式。

学习的前提是相信自己能学会。我们可以通过识别自闭症人士经历的自我调节和感觉处理困难，更好地理解他们的需求。情绪爆发、崩溃及问题行为通常分为三个阶段：（A）酝酿阶段，（B）愤怒阶段，（C）恢复阶段。理解这些阶段有助于更好地管理情绪，防止问题行为的发生。

情绪温度计是一种视觉化工具，用于帮助个体（尤其是儿童或有情绪调节困难的人）识别、表达和管理自己的情绪。它通过将情绪强度类比为温度计上的刻度，使抽象的情绪具体化，便于理解和应对。

此外，我们还可以通过制作**正念瓶子（Mindful Jar）**来帮助孩子学习情绪调节。正如Ross Greene所说：“孩子如果有能力，就会做得好（Kids Do Well if They Can）。”

PBIS（正向行为干预与支持）的重要特质在于，它并不是用来“修正”人的，而是一种改变彼此支持方式及鼓励正向社交互动的策略。我们还学习了发脾气与情绪失控的差异，以及M.E.A.T.S行为分析的基本原则，这些工具和方法帮助我们更好地理解和支持孩子的行为与情绪发展。

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分享：絕處逢生 | 伍禮霞姐妹

就在最痛苦、失望、傍徨、無助的情況下，神的恩典開始臨到我們。。。
這是我們幾年來生命轉角，絕處逢生的真實故事。
 
當我們經歷了上帝的祝福，就把這個祝福再傳出去吧！
我們柔和撒種，上帝會動工收割生命的改變就是最美好的見證，不必爭辯，無需誇口，只是真真實實分享自己的故事，使人聽了會感動，能理解，並回應你所說的，這就是傳福音了。
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分享：我的自閉症經歷 My autistic experience | 雪莉卡迪 Sherri Cady

       我名字叫雪莉。 大約 在11 年前，我因病不得不做一套高強度的化療，又因為化療會引起極度的噁心，所以同時服用了抗噁心的藥物。而這種藥物是有副作用，我隨后被診斷出患有這類藥物所引起的精神性病症，其表現為自閉症狀。

       當時我是一名性格外向的商學院講師，從不畏懼而且習慣課堂上，在一大群學生面前講課； 然而，服藥所帶來的自閉症改變了我的性格和行為方式。 我無法在公眾面前開口，並且畏懼與人直視。我不再外向了，總是低著頭眼睛注視地上。更無法與他人溝通中有互動和交流。 因為與人交流的不適感給我帶來了很大壓力，甚至連上街購物我都不敢自己去，因為在購物時不但要與人交流，而且還時常需要抬起頭來在貨架上尋找所要的東西，這些對我而言都是壓力。坦率地說，我恐懼任何可能性—-因‘超負荷’而引起的不適。我記得在電視上曾看到一個關於跳虱的報導，那種想像中與肌膚接觸所引發的不適感即刻觸發了我的不安。為了釋放和擺脫這種不安的躁動情緒，我常常會通過身體的擺動、哭泣或其他類似行為來讓自己平靜下來。 更多時候，我會在屋裡來回不停的踱步。 我的焦慮程度時常會變化，老公便買了iPad和下載了一些有趣的游戲（比如電影Rio)。當我極度焦慮時，便籍此來吸引我的注意力和安慰我。任何事情都有可能引起這種焦慮，比如鄰居造訪按一下門鈴，又或者自己家里偶爾的狗叫聲。為了躲避與人接觸我常常自己靜靜的坐在院子的角落裡。然而這一切竟然在我改用另一種化療和抗噁心的藥物后完全改變了，我又恢復了原本的自我。 我真的很感激。

       這段經歷使我深刻懂得和體體到作為自閉症患者有多艱難，以及他們所表現出的對周圍的恐懼，他們生活的不容易。設身處地的理解自閉症患者，換位思考他們的所想， 打開你的心扉去了解他們的經歷和體驗是什麼樣子。 儘管我的經歷對我而言是段痛苦的回憶，但它卻使我對那些患有自閉症的人產生了更多的同情心、耐心和理解。塞翁失馬言之患福。從這段經歷中悟出的知識和體驗確是無價的（尤其是作為一名教自閉症學生的老師）。

雪莉卡迪
退休教學教授，商學院
2022 年 5 月 23 日

     

          About 11 years ago, I completed a strong chemotherapy regimen and experienced an unusual side effect from the anti-nausea drug; I was diagnosed with a psychosis related to the anti-nausea drug and exhibited autistic actions.

          At the time, I was a business community college instructor with an outgoing personality, and I was used to giving lectures in front of large groups of students; however, my personality and actions changed. The way I experienced the world would not be the same. I was not able to speak and look directly at anyone in the eye. I would look down. I was no longer outgoing, and I could not understand the nuances of communicating with others. Going to the grocery store by myself was stressful as I did not want to look at anyone, but I somehow had to look up every so often to find an item on the shelf. Quite frankly, I was terrified of anything that would send me into an “overload state.” I recall seeing a news story on TV about bedbugs and immediately reacted by rocking, crying, and other behaviors to calm myself; many times, I would pace the floor. At various times my anxiety was high; my husband bought an iPad and purchased fun/amusing movies (e.g., the movie Rio) I could play to reduce my anxiety. If anyone rang our doorbell and my dog barked, I would get anxiety. Sometimes I would sit outside away from everyone to calm myself. Once I switched to another type of chemotherapy and anti-nausea drug after several months, I was back to being myself. I was grateful.

          The experience taught me how difficult and terrifying it is to exhibit autistic behaviors; I could not control how I reacted to my environment. It is difficult for the person who is autistic; it is not easy to be that person. Open your heart and mind to understand what it would be like to be that person. Even though my experience was terrifying, I developed much more empathy, patience, and understanding for those who experience autism, and this silver lining was priceless (especially as an instructor who at times taught autistic students).

Sherri Cady
Retired Teaching Professor, Business
May 23, 2022

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見證分享： 來自上帝的祝福 – 潘PAM 和 羅恩RON

來自上帝的祝福

上帝借著我們的特殊大衛向我們顯明了祂的祝福。

我們的家有五位成員：媽媽（潘PAM），爸爸 （羅恩RON）和三個兒子（安德魯 ANDREW，喬爾 JOEL 和大衛 DAVID）。 大衛，我們的老三，出生就腦部受傷。這影響了他之後的成長發育。這個孩子對我們整個家庭的影響十分重大并且極具艱難和挑戰。他之後被送進一個叫做“成長的機會” （A Chance to Grow）的治療機構接受密集的治療。大衛如何使我們和那些認識他的人的生命更加豐盛都是出於上帝真實奇妙的作爲。

God’s revealed blessings through our special needs’ son, David.

Our family consists of mom (Pam), dad (Ron) and 3 sons (Andrew, Joel and David). David, our 3rd son was born with brain injury which affected his growth and development. His impact on our family was powerful and challenging. He was put on an intensive program called “A Chance to Grow”. How he enriched our lives and those who came to know him is truly the working of God.